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LPLD Alliance

LPLD Alliance aims to raise awareness of Lipoprotein Lipase Deficiency and related conditions, known as Familial Chylomicronaemia Syndrome.  LPLD is an ultra-rare condition affecting 1:1,000,000 people.  People with LPLD don't have the enzyme lipoprotein lipase that breaks down fat.  Currently the only treatment of the condition is a radical reduction of fat in the diet to between 10g-20g fat daily which is very difficult to achieve. Not keeping to the diet leads to, among other things, severe stomach pain and pancreatitis.

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More about the charity

LPLD Alliance supports people affected by LPLD and related conditions to lead a full, healthy and integrated life and advocates for access to excellent care and new medicines.

Contact Information

LPLD Alliance
Tel 07920 715366
Registered charity no. 1165873

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Make a Donation Ltd. Registered in England & Wales. Company No. 07853867. Registered Office: 3 Manor Courtyard, Hughenden Avenue, High Wycombe, Buckinghamshire HP13 5RE